Parents/Carers Support

Core and Essential Service Standards for Supporting People with Profound and Multiple Learning Disabilities

Please see the attached Core & Essential Service Standards for Supporting people
with profound and multiple learning disabilities.

The Core and Essential Service Standards are designed to improve the lives and life experiences of people with profound and multiple learning disabilities.

West Sussex Parent Carer Forum  Website

The West Sussex Parent Carer Forum have a website at

Written and developed by parent carers, it aims to be both simple and easy to use.   Both parent carers and professionals, will find information on what we do and the help and support that is available in West Sussex for children and young people, aged 0-25 with additional needs and disabilities, and their families.

Please note that, as a registered charity, we are using in our domain name.  Our emails have also changed to this effect and you can contact us on our general office email at

SEND Benefits Advice

West Sussex provide advice regarding a range of benefits including Disability Living Allowance (DLA) and Personal Independence Payment (PIP). Use the link below to take you the West Sussex SEND Advice and Benefits Page. 


WellChild is a charity that through a range of practical and emotional support, training and information programmes, gives seriously ill children and their families the best chance to thrive.


National UK Charity for Seriously Ill Children | WellChild

Reaching Families

Reaching Families is a parent-carer led, grassroots charity which aims to support parents and families of children and young people with special educational needs and disabilities (SEND) in their daily lives, in particular through the delivery of information, training and peer support. We work with over 3,000 West Sussex families every year through a range of high quality projects and services.


Reaching Families


An organisation that supports families of children with disabilities across the UK. Their website offers advice and information as well as a range of contacts including a free helpline that offers emotional and practical support. They also provide a range of workshops and information sheets covering topics ranging from benefits and money to sleep and wellbeing.

Contact: the charity for families with disabled children

Together for short lives

Are a charity for families of seriously ill children who offer support to make sure they get the vital care and help that they need.

They offer information, advice and campaign for change. They have a helpline for families facing the toughest of times. They offer confidential emotional support and information on a range of issues and provide easily digestible information about available support so families can spend less time searching for help and have more time together.

Together for Short Lives: Children’s Charities – Children Hospices

Challenging behaviour foundation

Are a charity which focuses on the needs of people with very complex needs/ Learning difficulties whose behaviour challenges. They support, equip, and empower families through their individual information and support work. 

Homepage for the Challenging Behaviour Foundation

NAC (Nurturing effective care)

Nac is an organistation that offers information and training to support the emotional and mental health needs of children and adults with severe and profound intellectual disabilities. To ensure they are recognised and cared for using the latest evidence and neuroscience based practices.

Home – NAC Wellbeing

Get in Touch

If you would like more information, please do not hestitate to contact us. Please click on the button below:

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